Can you say antiphospholipid syndrome

Since February I have been undergoing blood test and folks the results are in! I do not have von Willenbrand disorder. I have been diagnosed with  antiphospholipid syndrome  (trying saying that three times fast) otherwise known as ASP.  Which is a disorder of the immune system.

The disorder is  also called phospholipid antibody syndrome or Hughes syndrome in honor of the doctor who first described it. The antiphospholipid antibody (a protein) is not considered a normal blood protein and has been found to be associated with a number of illnesses.

In the past I have displayed two very different symptoms, deep vein thrombosis (blood clot ) twice and thrombocytopenia (many times), which is a decrease in platelets, blood cells necessary for clotting.

The nasal surgery which was the original reason for the blood test is back on but I will be admitted to the hospital and monitored before and after the surgery.

“Antiphospholipid antibodies, such as anticardiolipin, have also been associated with decreased levels of prostacyclin, a chemical that prevents the clumping together of normal blood clotting elements called platelets. The treatment of patients with anticardiolipin syndrome has substantially evolved since they were discovered to be clinically important in the mid-1980s. Each manifestation of the antiphospholipid syndrome, and each individual patient with the condition, is treated uniquely.“

Told you I was special.

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4 Responses to Can you say antiphospholipid syndrome

  1. san says:

    Can you put it in engish oh special one?

  2. Mam says:

    I can hardly spell it, let alone say it

  3. Andrea_R says:

    “# Cognitive problems, such as poor memory”

    Awesome. Coulda told them that one. ;P

  4. Wanda says:

    I always knew you were special. Best of luck with the surgery.